Wednesday, April 16, 2014

Aiden's GI appointment

Today we had an encouraging appointment with Aiden's GI specialist. The specialist wants to do a series of tests depending on the outcome of each test and he says this needs to be done quickly.
The first test will be an imaging of the lower GI to check for any obstructions.  The main reason for this is that the last time Aiden threw up, it was green and the specialist says that it's not normal.  It should be yellow or white, not green.  If there is an obstruction, then Aiden will have surgery.
If everything is normal, then Aiden will have an endoscopy on April 28th.  This is to check for any stomach lining infections, which we think he might have. 
During that time, they will also put a tube down to his esophagus to monitor and record anything that goes on for 24 hours. He will come home with the tube and we will see if he even keeps it in for that long!  We recall very well how he did not like the tube down his nose after his surgery and pulled it out 3 times.  He was only a week old so who knows how he will be with this tube...
If everything is normal there, then he will have a Hydrogen breath test.
If that comes out normal, then they will do Motility Testing.  "Gastrointestinal (GI) motility refers to the movement of food from the mouth through the pharynx (throat), esophagus, stomach, small and large intestines and out of the body. The GI system is responsible for digestion. The moment you even look at food, your body starts beginning this complicated process."
This test, according to the specialist, "is a little hairy" because there aren't really many good tests and it's hard to treat.

Keep those prayers coming, please.  We really appreciate them :).

Tuesday, April 8, 2014

Aiden's Status

Aiden, like I mentioned before, will be having an appointment with a GI specialist on April 16th.  It can't come soon enough for us.

We've been frequently seeing his pediatrician because he has been throwing up more and more.  She changed his medicine from Prevacid to Nexium and prescribed Reglan.  During our visits with her, she always asks if he is having bowel movements.  We've always told her that he is very regular and there are no issues there.  She asks us because it is a symptom of abdominal adhesions, which could very well happen because of his surgery. 

On Sunday, April 6th, he had not had a bowel movement since Friday and he had been throwing up.  Charles and I decided to take Aiden to Texas Children's ER.  We have amazing friends and we dropped Michael off with them.  After about 4 hours of being there, they took 2 x-rays and confirmed that there was not a blockage and that there was, in fact, a lot of poop.  After 6 hours, we got a prescription for Miralax (softens stool) and we went home.

The next morning, I called his pediatrician's office and she returned our phone call telling us that we needed to go see her.  Aiden had still not had a bowel movement and was still throwing up.  She gave him an enema.  She also said to stop the Reglan since it's what coincides with when he started to be constipated. He was in so much pain and had no idea what to do but he finally had 2 dirty diapers.

We got home and tried giving him the Miralax but he would not take anything.  We tried Gatorade, juice (different types), Pedialyte and nothing.  He kept throwing up and just wanted water.  His nurse called to see how he was doing and told us that water was not the best since it could agitate his stomach and maybe causing him to throw up more.  We were at a loss.  Aiden finally stopped throwing up at 9 pm.

Tuesday, April 8:  We decided to take a different approach to his medication.  I made him a Vanilla Arbonne shake with a Greens mix powder and Charles would put a little bit of the shake in a cup with some Miralax and he would actually drink it.  Charles made deals with him in which Aiden could drink a sip of water (all he wanted) but then he had to have the shake.  Aiden took the deal and finished up his medication.  He finally had a dirty diaper close to 2 pm!!!  Then he had another one and is now acting more like himself. 

Aiden is looking really skinny but we Thank God that he is doing better.  36 hours with no vomit is a very welcome sign for us (and gives our washing machine a break).

October 2013-March 2014

It's been a very long time since we last wrote and we apologize.  Here are some recaps of what has been happening in our lives.
Aiden has been walking for a long time now and LOVES to run with Michael.  It's really very cute!

Amada turned 30!!  Charles had a surprise birthday party planned and it was truly amazing.  He made this special book that has my life from when we met until now :)

Michael dressed up like Woody from Toy Story and Aiden like the Scarecrow from The Wizard of Oz for Halloween.  Charles dressed up like a triathlete and I, like a runner.  We went trick-or-treating around the neighborhood and Michael loved saying hi to everyone.

We went camping in Grampa and Gigi's new camper, which Michael absolutely loved.  We did quite a bit on that camping trip.  Michael went fishing with his new fishing pole, we tried out their new boat, we ran (saw a long snake), and we hiked quite a bit. Aiden loved his Elmo flashlight and really enjoyed camping.

We received turf from Kyle Field from Grampa and Gigi as an early Christmas present.  It is beautifully adorned with maroon and white rocks.

We spent Thanksgiving in Zapata.  The boys rode horses to their hearts content.

Christmas Time!!!  We did quite a bit during the month of December, especially one weekend in New Orleans.  The girls went from one party to the next.  It all started with a bridal shower, then another bridal shower, and then the PiliĆ© Christmas party.  Very fun but we were certainly tired.
Michael did his very first Fun Run!  It was the Jingle Bell Run and boy, when I told him that we were close to the finish line, he RAN!!!  It was awesome!!
It was definitely a "Puzzle" Christmas.  We got about 6 puzzles all together as Christmas gifts.  We've been putting a lot of puzzles together.  In fact, Charles, Elsa, and I rang in the New Year doing a 1500 piece puzzle :)

Aiden got his first haircut on December 31st.

We got a cat.  She came to our doorstep, I picked her up, took her around the neighborhood to figure out whom she belonged to and no luck.  When we took her to the vet, they found out she was chipped.  They called her owner.  Next morning, she was BACK!  I took her back to the vet to get the owner's information and I called her.  She came to pick her up that afternoon.  She came BACK 4 days later and we've had her ever since.  We call her Sol (sun) and Michael calls her Sol Tiger Knee Cat (don't ask).
She's sweet and beautiful!
Michael went to the movie theater for the first time ever and we saw the movie Frozen.
Charles celebrated his birthday by having a fun ULA.

Our first born turned 4!!!!  For some reason, 4 seems old to me and he really is getting older in the way he speaks, thinks, and acts.  My baby is not really looking like a baby anymore :(.  He's a sweetheart!  His birthday was a Western Theme so naturally we had ponies, cowboy hats, and bandanas :)

We also had some ADORABLE pictures taken of the boys by Rebecca Penny.  They are seriously precious.

Michael completed another Fun Run.  He ran a 1k on the sand! The run was in Galveston and it was cold and windy but he had a lot of fun and loved it.  We would go out for practice runs on the running tracks close to our house so he was well prepared :).

Our little Aiden has not had the easiest life yet.  We will be going to a GI specialist on April 16th and see what they tell us.  We hope and pray that they have some answers and that he has a simple solution.

We have also found out that Michael can read and write in Spanish.  He recently started getting reading homework in English from Montessori, so he's also reading in English.  I am truly impressed.

Aiden has been talking a lot more and can repeat most things such as: por favor, ya, si, mama (finally!!), Michael, Mickey, mum mum (snack he calls by name), and a few more that he's been saying for a long time like Dadda.